#MECFS is an active hashtag on Bluesky. In the last 30 days, 293 people shared 1,318 posts with it — around 44 a day. Activity is up 4% versus the previous week, peaking on Jul 27 with 66 posts.
Tags most often used together with #MECFS.
www.researchsquare.com
Smartphone-based monitoring of heart rate variability and resting heart rate predicts variability in symptom exacerbations in people with complex chronic illness
Background: Complex chronic conditions like Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve energy limitations and changes in heart rate variability (HRV) and resting heart r...
www.berliner-zeitung.de
Zu krank zum Leben: Warum Friedrich (23) beim Trauerzug für ME/CFS-Tote fehlt
650.000 Menschen in Deutschland haben ME/CFS. Ein Student liegt abgeschirmt im Zimmer – seine Mutter demonstriert mit anderen für Erkrankte wie ihn.
mein.aufstehn.at
Jetzt unterzeichnen: ME/CFS Soforthilfe-Paket für Schwerkranke JETZT!
Menschen mit ME/CFS sind oft schwerstkrank und im Alltag auf umfassende Unterstützung angewiesen. Dennoch fehlen vielen Betroffenen in Österreich passende medizinische Versorgung und soziale Absicheru...
link.springer.com
Transdisziplinäres Expert:innen-Statement: Pflegeleitfaden für Menschen mit schwerem ME/CFS in der häuslichen Versorgung - Wiener Medizinische Wochenschrift
Background Many of those affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have significant care needs. However, post-exertional malaise, the defining feature of ME/CFS, means th...
Colandme (Extremist Allegedly) 🏴 @coldon1983.bsky.social
In 13 years we’ll be in the same pathetic position unless we get a national movement and support charity to further our cause and prevent people stumbling into an ME diagnosis because they’ve never heard of it unaware of the potential severe consequences of ignoring post viral ilness at the outset
Carole Bruce @cabruce.bsky.social
Apparently it’s #SevereMEWeek Rather than producing loads of content showing how ill we are, yet again, maybe this year the ME orgs could call out those responsible for our continued dismissal, gaslighting, and abuse. By name preferably. Maybe we could all do the same?
Adam @abrokenbattery.bsky.social
“Patients have battled for years against doctors, psychiatrists and the public who believed ME was a psychological condition.” ITV journalist Stacey Poole reporting on severe ME in 2005. More than 20 years later, little has changed. #SevereMEAwarenessWeek #MECFS
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