#MyalgicEncephalomyelitis is an active hashtag on Bluesky. In the last 30 days, 33 people shared 137 posts with it — around 5 a day. Activity is up 115% versus the previous week, peaking on Sep 21 with 14 posts.

Posts with #MyalgicEncephalomyelitis

Brent Forman 🇨🇦

@joeblow604.bsky.social

over 1 year ago

This #oilpainting I did for my son before #MyalgicEncephalomyelitis. I've always just painted what I want & give them away, but this one he asked for something specific & did my best to give him that #MEcfs #painting #art #artwork #brentmichaelstudios #BMS #langleyartist #BCartist #canadianartist

An oil painting of a near frozen winding stream, a cabin on the right, heading towards a bright yellow horizon in the distance. The colors are a mix of greens and yellows as well as snow.

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Tom Kindlon

@tomkindlon.bsky.social

2 days ago

2/ What sleep dysfunction in ME/CFS feels like #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

What sleep dysfunction in ME/CFS feels like insomnia jet lagged torture feeling unrefreshed after sleep cannot sleep easily despite exhaustion fragmented sleep "tired but wired" unpredictable sleep patterns hypersomnia frustrating feeling hungover/drunk amplified symptoms lonely poisoned feeling like a zombie Recurring themes from ME Research UK Symptom Saturday Sleep Dysfunction Survey INFORM. INFLUENCE. INVEST.

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Tom Kindlon

@tomkindlon.bsky.social

1 day ago

3/ What sleep dysfunction in ME/CFS feels like #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

SLEEP DYSFUNCTION IN ME/CFS
"...Even if I've slept 'well', the mornings are awful. It takes hours for me to be able to make my brain work, or find words, or reply to texts etc and I feel so tired and foggy. I can't do anything in the mornings which means I miss out on all sorts of things locally which only happen in the mornings..."
ieN R E StrH SCO36942
INFORM. INFLUENCE. INVEST.

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Paula Knight 🎨✒️♿

@paulaknight.bsky.social

9 days ago

A couple of weeks ago it was my 3000th day bedridden. I drew this to mark the occasion. It's a long time for both illness-haver and carer #MyalgicEncephalomyelitis #MEcfs #ChronicIllness #DisabledArtists

A three panel one page comic featuring a white woman in a profiling bed in grey blue watercolour and the words 3,000 days in bed with severe myalgic encephalomyelitis. Other colours are brick red and muted orange

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Tom Kindlon

@tomkindlon.bsky.social

12 months ago

New Polish study which also involved some UK researchers: "The gut microbial composition is different in chronic fatigue syndrome than in healthy controls" www.nature.com/articles/s41... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Abstract
The pathogenesis of Chronic Fatigue Syndrome (CFS) is yet unknown. This study aimed to assess the gut microbial composition in CFS patients versus in healthy controls (HCs). The composition of fecal bacteria was examined in twenty-five CFS patients and sixteen HCs using Illumina sequencing of 16 S rRNA gene amplicons targeting the V3-V4 bacterial gene regions. 143 (46%) of the microbial genera were found only in the CFS. In addition, the gut microbial composition in the CFS patients contained a much higher proportion of the 10 most commonly found bacteria compared to the HCs group. A significantly lower observed number of operational taxonomic units (OTUs) was noted in CFS compared to HCs (p = 0.045). Significant between-group differences in the gut microbial composition in CFS compared to HCs were noted. The three most discriminating Amplicon Sequencing Variants (ASVs): ASV 191, ASV 44, and ASV 75, were identified as significantly more abundant in the healthy control group compared to the patient group. In addition, the Neural Network (multilayer perceptron) was able to discriminate gut microbial composition from CFS versus HCs with excellent performance (AUC = 0.935). The gut microbial composition is different in CFS patients compared to HCs. Further studies should assess the pathophysiological consequences of these differences as well as the effectiveness of therapies aimed at modifying the gut microbial composition in CFS patients.

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Tom Kindlon

@tomkindlon.bsky.social

2 days ago

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @cgatist.bsky.social

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María Richardson

@diatoma.bsky.social

over 1 year ago

Have you watched this excellent intro to #MyalgicEncephalomyelitis #MECFS #PEM by @scishow.bsky.social ? It's only 8 minutes long & jam-packed with important info (including helping folks with #LongCovid that matches mild #ME identify #PEM & prevent harm 🙏🏻) www.youtube.com/watch?v=w….

www.youtube.com

Exercise Actually Makes Chronic Fatigue Syndrome Worse

YouTube video by SciShow

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Life shrinks with ME/CFS. Found on the CFS community on Reddit #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

"Life shrinks with ME/CFS" which highlights different severities of ME/CFS and how they affect patients.

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Tom Kindlon

@tomkindlon.bsky.social

7 days ago

🧵 I thought this 7-page introductory piece written by a medical doctor was very good "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by @drmichaelabauer.bsky.social storage.e.jimdo.com/file/…. #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 1/

"Understanding ME/CFS An Introduction to a Complex Illness"
Dr. med. Michaela Bauer · August 2026

Image of a female reading a book entitled "ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
with 5 thought bubbles showing what she is thinking about

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Now I've had #MyalgicEncephalomyelitis 36 years (since age 16), 30 years with #SevereME🙁 We need more public & private* research money to speed up progress Here's my story in Irish Independent m.independent.ie/life/hea…. *List of research funds phoenixrising.me/myalgic-…. #MEcfs #CFS

Woman lying in a hospital-type bed
#MEACTION
M.E. is a career-ending, life-destroying disability. M.E. impairs patients' ability to function on a regular basis both cognitively and physically. 75% cannot work and some of the rest only work part-time. 25% of patients are housebound or bedbound,
with the sickest unable to brush their teeth or feed themselves.

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Tom Kindlon

@tomkindlon.bsky.social

6 days ago

YouTuber @skallagrim.bsky.social with 1.63M followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views www.youtube.com/watch?v=G…. See next post for a few quick thoughts #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS 1/

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid: Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome Also shows all the range of ME/#CFS symptoms #MECFS 1/