#NEISvoid is an active hashtag on Bluesky. In the last 30 days, 48 people shared 258 posts with it — around 9 a day. Activity is down 22% versus the previous week, peaking on Sep 1 with 16 posts.
Tags most often used together with #NEISvoid.
George Monbiot @georgemonbiot.bsky.social
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
Doc Impossible @impossiblephd.bsky.social
*Frothing at the mouth with excitement* HEY GUESS WHAT, YOU DON'T HAVE ONE BRAIN, YOU HAVE TWO! med.stanford.edu/news/all-new...
med.stanford.edu
themighty.com
Why It's Hard to Get Anything Done When You're in Pain
"I am in pain now, and almost certainly still will be whenever you read this."
www.brainlesionandme.com
Chronic Illness: Finding Hope on an Unpredictable Journey
Living with chronic illness has taught me that life can change without warning. Cruising has taught me to find hope in the unexpected.
myblurredworld.com
Exploring my relationship with the word ‘disabled’ - My Blurred World
I used to have a very complicated relationship with the word 'disabled', let me talk you through our history and where I'm at now.
www.publicsource.org
I look fine, but dealing with chronic illness is my full-time job
Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.
despitepain.com
What's it Like to Live With Pain — With a Capital P - Despite Pain
In this post, I explain what it's really like to live with pain. It's more than the physical pain because pain brings a lot of other issues.
George Monbiot @georgemonbiot.bsky.social
Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.
crackednailsandsplitends.co.uk
When Disabled People Attack Other Disabled People<br/><br/>Why do disabled people judge each other? I explore invisible illness, mobility aids and why our community needs compassion instead of competition. - Cracked Nails & Split Ends
Disability is not a competition. I explore invisible illness, mobility aids and why disabled people deserve compassion, accessibility and solidarity.
migrainegirl.substack.com
Living with Chronic Hemiplegic Migraine: Turning Pain into Purpose
Using the A Chronic Voice August writing prompts, I reflect on thirteen years of living with Chronic Hemiplegic Migraine and why I continue to turn pain into purpose
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