#CFS is an active hashtag on Bluesky. In the last 30 days, 36 people shared 160 posts with it — around 5 a day. Activity is up 14% versus the previous week, peaking on Jul 20 with 11 posts.

Posts with #CFS

Tom Kindlon

@tomkindlon.bsky.social

1 day ago

“I want to warn those who are working but barely getting by: do not ignore your symptoms, because you risk losing several levels of function. I pushed and ignored my symptoms to the point where I had nothing left. Pacing is so important” #MyalgicEncephalomyelitis #MEcfs #CFS #PwME 1/

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Tom Kindlon

@tomkindlon.bsky.social

almost 2 years ago

It's been great to see the influx of people from the ME/CFS and long Covid community in the last week. Here's a starter pack by @chromatowski.bsky.social that's worth checking out: bsky.app/starter-pack... It lists interesting people to follow and also has a feed #MEcfs #CFS #PwME #LongCovid 1/

Accounts and feeds related to ME/CFS, Long Covid and related conditions and topics. (FAQ: if you are hoping to be listed on a starter pack, unfortunately the format has a cap of 150 accounts and this pack has hit that, so I recommend creating another pack to cover more of the community!)

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Well done to Mark Vink on getting another piece published: this one has the provocative title, "CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that" www.frontiersin.org/journ…. #MEcfs #CFS #PwME

www.frontiersin.org

Frontiers | CBT and graded exercise therapy studies have proven that ME/CFS and long Covid are physical diseases, yet no one is aware of that

The cognitive behavioral model (CBmodel) (1,2) has dominated the world of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) since the 1990s. Accord...

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Tom Kindlon

@tomkindlon.bsky.social

4 days ago

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/

APPENDIX 2. ME/CFS Symptom Prevalence and Severity (These prevalence and severity figures are from A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome, P. De Becker, N. McGregor, and K. De Meirleir. Journal of Internal Medicine 2001;250:234-240.) A total of 2,073 consecutive patients with major complaints of prolonged fatigue were assessed. Among them 1,578 met the Fukuda criteria and of those, 951 met the Holmes criteria. The figures indicate the differences in prevalence and severity of symptoms between these patient groups.

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Amber

@flowergirl78.bsky.social

over 1 year ago

Yes. 🦋 💜 #chronicillness #chronicpain #fatigue #spoonie #spooniewarrior #fibromyalgia #brainfog #CFS #FMS #disabled

13 43 204

Tom Kindlon

@tomkindlon.bsky.social

10 months ago

New Polish study which also involved some UK researchers: "The gut microbial composition is different in chronic fatigue syndrome than in healthy controls" www.nature.com/articles/s41... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Abstract
The pathogenesis of Chronic Fatigue Syndrome (CFS) is yet unknown. This study aimed to assess the gut microbial composition in CFS patients versus in healthy controls (HCs). The composition of fecal bacteria was examined in twenty-five CFS patients and sixteen HCs using Illumina sequencing of 16 S rRNA gene amplicons targeting the V3-V4 bacterial gene regions. 143 (46%) of the microbial genera were found only in the CFS. In addition, the gut microbial composition in the CFS patients contained a much higher proportion of the 10 most commonly found bacteria compared to the HCs group. A significantly lower observed number of operational taxonomic units (OTUs) was noted in CFS compared to HCs (p = 0.045). Significant between-group differences in the gut microbial composition in CFS compared to HCs were noted. The three most discriminating Amplicon Sequencing Variants (ASVs): ASV 191, ASV 44, and ASV 75, were identified as significantly more abundant in the healthy control group compared to the patient group. In addition, the Neural Network (multilayer perceptron) was able to discriminate gut microbial composition from CFS versus HCs with excellent performance (AUC = 0.935). The gut microbial composition is different in CFS patients compared to HCs. Further studies should assess the pathophysiological consequences of these differences as well as the effectiveness of therapies aimed at modifying the gut microbial composition in CFS patients.

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Congrats to Mark Vink (who is bedbound with ME) for publishing another paper "Confirmed: The Conclusion by NICE that CBT is not an Effective Treatment for ME/CFS; Re-Analysis of a Systematic Review" www.scibasejournals.org/n…. A true hero 👍👏 #MEcfs #CFS #PwME

Screenshot of most of page 1 including the header and abstract

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Tom Kindlon

@tomkindlon.bsky.social

2 days ago

"Symptoms made worse due to physical or cognitive exertion in Myalgic Encephalomyelitis & Chronic Fatigue Syndrome" #MEcfs #PwME #CFS #ME #MyalgicE

Word art of the data from "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome i.e. symptoms that are more common are bigger in font size than ones that are less common

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Tom Kindlon

@tomkindlon.bsky.social

about 21 hours ago

Manx Radio (Isle of Man) Man with severe ME speaks out about 'cruel and difficult' disease www.manxradio.com/news/is…. 8-minute audio plus short text introduction #SevereME #MEcfs #PwME #CFS #ME #MyalgicE

Man with severe ME speaks out about 'cruel and difficult' disease

News Home
More from Isle of Man News

Friday, 7 August 2026 06:17

Photo of Juan Corlett lying down
Picture credit: Juan Corlett

38-year old Juan Corlett's condition has worsened in recent years

A man living with severe ME on the Island says there are times when he can only manage around 15 minutes of conversation a day.

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

🧵 "Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher." www.sciencenorway.no/chro…. #MEcfs #CFS #PwME 1/