#ChronicFatigueSyndrome is an active hashtag on Bluesky. In the last 30 days, 7 people shared 58 posts with it — around 2 a day. Activity is up 190% versus the previous week, peaking on Sep 21 with 11 posts.

Posts with #ChronicFatigueSyndrome

Tom Kindlon

@tomkindlon.bsky.social

1 day ago

2/ What sleep dysfunction in ME/CFS feels like #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

What sleep dysfunction in ME/CFS feels like insomnia jet lagged torture feeling unrefreshed after sleep cannot sleep easily despite exhaustion fragmented sleep "tired but wired" unpredictable sleep patterns hypersomnia frustrating feeling hungover/drunk amplified symptoms lonely poisoned feeling like a zombie Recurring themes from ME Research UK Symptom Saturday Sleep Dysfunction Survey INFORM. INFLUENCE. INVEST.

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Tom Kindlon

@tomkindlon.bsky.social

1 day ago

3/ What sleep dysfunction in ME/CFS feels like #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

SLEEP DYSFUNCTION IN ME/CFS
"...Even if I've slept 'well', the mornings are awful. It takes hours for me to be able to make my brain work, or find words, or reply to texts etc and I feel so tired and foggy. I can't do anything in the mornings which means I miss out on all sorts of things locally which only happen in the mornings..."
ieN R E StrH SCO36942
INFORM. INFLUENCE. INVEST.

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Tom Kindlon

@tomkindlon.bsky.social

12 months ago

New Polish study which also involved some UK researchers: "The gut microbial composition is different in chronic fatigue syndrome than in healthy controls" www.nature.com/articles/s41... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Abstract
The pathogenesis of Chronic Fatigue Syndrome (CFS) is yet unknown. This study aimed to assess the gut microbial composition in CFS patients versus in healthy controls (HCs). The composition of fecal bacteria was examined in twenty-five CFS patients and sixteen HCs using Illumina sequencing of 16 S rRNA gene amplicons targeting the V3-V4 bacterial gene regions. 143 (46%) of the microbial genera were found only in the CFS. In addition, the gut microbial composition in the CFS patients contained a much higher proportion of the 10 most commonly found bacteria compared to the HCs group. A significantly lower observed number of operational taxonomic units (OTUs) was noted in CFS compared to HCs (p = 0.045). Significant between-group differences in the gut microbial composition in CFS compared to HCs were noted. The three most discriminating Amplicon Sequencing Variants (ASVs): ASV 191, ASV 44, and ASV 75, were identified as significantly more abundant in the healthy control group compared to the patient group. In addition, the Neural Network (multilayer perceptron) was able to discriminate gut microbial composition from CFS versus HCs with excellent performance (AUC = 0.935). The gut microbial composition is different in CFS patients compared to HCs. Further studies should assess the pathophysiological consequences of these differences as well as the effectiveness of therapies aimed at modifying the gut microbial composition in CFS patients.

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Tom Kindlon

@tomkindlon.bsky.social

1 day ago

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @cgatist.bsky.social

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Tom Kindlon

@tomkindlon.bsky.social

6 days ago

🧵 I thought this 7-page introductory piece written by a medical doctor was very good "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by @drmichaelabauer.bsky.social storage.e.jimdo.com/file/…. #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 1/

"Understanding ME/CFS An Introduction to a Complex Illness"
Dr. med. Michaela Bauer · August 2026

Image of a female reading a book entitled "ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome"
with 5 thought bubbles showing what she is thinking about

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Life shrinks with ME/CFS. Found on the CFS community on Reddit #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

"Life shrinks with ME/CFS" which highlights different severities of ME/CFS and how they affect patients.

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Tom Kindlon

@tomkindlon.bsky.social

5 days ago

YouTuber @skallagrim.bsky.social with 1.63M followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views www.youtube.com/watch?v=G…. See next post for a few quick thoughts #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS 1/

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid: Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome Also shows all the range of ME/#CFS symptoms #MECFS 1/

Table 4. Symptoms made worse due to physical or cognitive exertion (N = 1534). % (n) "Yes" % (n) at "2" Threshold 99.4 (1525) 98.0 (1504) 98.9 (1517) 98.3 (1508) Items 1. Reduced stamina and/or functional capacity 2. Physical fatigue 3. Cognitive exhaustion 4. Problems thinking 5. Unrefreshing sleep 6. Muscle pain 7. Insomnia 8. Muscle weakness/instability 9. Temperature dysregulation 10. Flu-like symptoms 11. Aches all over your body 12. Physically fatigued while mentally wired 13. Dizziness 14. Gastro-intestinal problems 15. Headaches 16. Ataxia 17. Increased heart rate/heart palpitations 18. Weak or stiff neck 19. Joint pain 20. Problems with speech 21. Sore throats 22. Muscle twitching 23. Night sweats and chills 24. Sore eyes 25. Nerve pain 26. Sore lymph nodes 27. Nausea 28. Tinnitus 29. Trouble breathing 30. Neurological symptoms 31. Excessive sleep 32. Loss of appetite 33. Migraines 34. Cardiac pain and/or arrhythmia 35. Brain twangs 36. Severe burning sensation all over skin 37. Paralysis/inability to move 38. Premenstrual symptoms 39. Decreased heart rate

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Tom Kindlon

@tomkindlon.bsky.social

over 1 year ago

A big thank you to everyone who did anything, big or small, for the #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (+/or #LongCovid) cause in 2024 (including simply sharing messages on social media). 👍👏 Together we can make a difference. #MEcfs #PwME #PwLC

Image showing "thank you" in lots of different languages

3 24 109

Tom Kindlon

@tomkindlon.bsky.social

7 months ago

The creator of a very popular ME/CFS awareness image has taken feedback on board and updated it #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfsAwareness 1/

"Life Shrinks with ME/CFS" updated poster
https://reddit.com/gallery/1n3mtga
https://canva.com/design/DAGwAOGcbg0/tyJ1ZDoOnac_hvPsFFWvkQ/view
https://images2.imgbox.com/04/b4/KaFii54d_o.png
https://images2.imgbox.com/56/ef/Nha8GLBw_o.png

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Tom Kindlon

@tomkindlon.bsky.social

7 months ago

M.E.: "How it can shrink one's world, bit by bit" by Kornelia Paulsen (who no longer appears to be on X or IG). #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #SevereME