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Bluesky · Hashtag

#POTS

202
posts · 30d
80
users
7
posts / day
2.5
posts / user
+ 42% vs last week

#POTS is an active hashtag on Bluesky. In the last 30 days, 80 people shared 202 posts with it — around 7 a day. Activity is up 42% versus the previous week, peaking on Jul 14 with 41 posts.

#POTS posts per day (last 30 days)

Related tags

Tags most often used together with #POTS.

#MECFS 52 #LongCovid 46 #MCAS 46 #EDS 35 #ChronicIllness 22 #SFN 17 #disability 16 #PostCovid 15 #PAIS 15 #Postvac 14 #CCI 14 #Dysautonomia 13

Posts with #POTS

Beth Swanson
@write4chocolate.bsky.social
over 1 year ago
So many people sharing stories about denials from their health insurance company this week. Here’s ours. www.huffpost.com/entry/br…. #healthcare #healthinsuranace #cigna #UHC #CEO #POTS #hEDS #CCI #BCBS #Chronicillness
My Daughter Desperately Needs Brain Surgery. Our Insurance Company's Response Has Been Shocking.

www.huffpost.com

My Daughter Desperately Needs Brain Surgery. Our Insurance Company's Response Has Been Shocking.

"The insurance company has an army of people who are very concerned about paperwork and precise wording ... My kindness and patience has shifted to fury."
45 213 453
Patients with Power
@ptswithpower.com
over 1 year ago
To defend ourselves from medical gaslighting and bad treatment by doctors, patients are told “don’t be afraid to speak up,” “stand up for yourself,” “advocate!” Have you ever had to advocate for yourself in a medical appointment, only to be treated WORSE because of it? #neisvoid #eds #pwme #pots
44 51 254
Michael Stingl
@neurostingl.bsky.social
over 1 year ago
Der Diagnostic Delay bei #POTS - einer Erkrankung mit oft vergleichsweise typischen Symptomen - ist schlimm. Dass er bei Frauen fast doppelt so lange wie bei Männern ist, und dass dies offensichtlich durch ärztliche Faktoren bedingt ist, muss zu denken geben. academic.oup.com/eurjcn/a….
Biological sex-dependent differences in postural orthostatic tachycardia syndrome (POTS)

academic.oup.com

Biological sex-dependent differences in postural orthostatic tachycardia syndrome (POTS)

AbstractAims. This prospective, cross-sectional study aimed to identify sex-based differences in diagnostic and symptom experiences in postural orthostatic
9 85 204
Tom Kindlon
@tomkindlon.bsky.social
10 months ago
"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)" batemanhornecenter.org/wh…. New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions

batemanhornecenter.org

Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions

When The Lancet Rheumatology published Dr. Brittany Adler’s essay, Expanding the Rheumatology Lens: Should We Embrace POTS and Post-Infectious Syndromes?, it captured a reality many in the field have…
2 52 167
Prof Kate Loder
@kghist.bsky.social
12 months ago
My daughter & I have both had severe long covid for 5 yrs. Out of the blue, in the last couple of weeks, my daughter’s heart/POTS issues have started to resolve. She’s now able to sit up most of the day, rather than lying. Life changing! So happy! HOPE & ✊ to all going through it #longcovid #pots
10 7 134

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