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Bluesky · Hashtag

#POTS

120
posts · 30d
73
users
4
posts / day
1.6
posts / user
-41% vs last week

#POTS is an active hashtag on Bluesky. In the last 30 days, 73 people shared 120 posts with it — around 4 a day. Activity is down 41% versus the previous week, peaking on Sep 9 with 9 posts.

#POTS posts per day (last 30 days)

Related tags

Tags most often used together with #POTS.

#LongCovid 31 #MECFS 29 #MCAS 23 #ChronicIllness 21 #Dysautonomia 18 #me 17 #EDS 16 #hEDS 11 #PEM 11 #LC 9 #ChronicPain 9 #blogpost 7

Posts with #POTS

Beth Swanson
@write4chocolate.bsky.social
almost 2 years ago
So many people sharing stories about denials from their health insurance company this week. Here’s ours. www.huffpost.com/entry/br…. #healthcare #healthinsuranace #cigna #UHC #CEO #POTS #hEDS #CCI #BCBS #Chronicillness
My Daughter Desperately Needs Brain Surgery. Our Insurance Company's Response Has Been Shocking.

www.huffpost.com

My Daughter Desperately Needs Brain Surgery. Our Insurance Company's Response Has Been Shocking.

"The insurance company has an army of people who are very concerned about paperwork and precise wording ... My kindness and patience has shifted to fury."
46 212 452
Patients with Power
@ptswithpower.com
almost 2 years ago
To defend ourselves from medical gaslighting and bad treatment by doctors, patients are told “don’t be afraid to speak up,” “stand up for yourself,” “advocate!” Have you ever had to advocate for yourself in a medical appointment, only to be treated WORSE because of it? #neisvoid #eds #pwme #pots
44 51 254
Michael Stingl
@neurostingl.bsky.social
over 1 year ago
Der Diagnostic Delay bei #POTS - einer Erkrankung mit oft vergleichsweise typischen Symptomen - ist schlimm. Dass er bei Frauen fast doppelt so lange wie bei Männern ist, und dass dies offensichtlich durch ärztliche Faktoren bedingt ist, muss zu denken geben. academic.oup.com/eurjcn/a….
Biological sex-dependent differences in postural orthostatic tachycardia syndrome (POTS)

academic.oup.com

Biological sex-dependent differences in postural orthostatic tachycardia syndrome (POTS)

AbstractAims. This prospective, cross-sectional study aimed to identify sex-based differences in diagnostic and symptom experiences in postural orthostatic
9 85 204
Kristin Houlihan, Writer
@kristinwrites.bsky.social
1 day ago
It’s kind of amazing the difference abdominal compression is making for me. Either my past methods weren’t good enough OR I was previously too sick for it to matter (I suspect the latter). I have not increased my upright time but the time i am upright is less uncomfortable #LongCovid #MECFS #POTS
3 0 20
Long Covid Advocacy
@longcovidadvoc.com
16 days ago
Our statement in response to The Telegraph article: 'How having a disability became cool' Young women, named 'sickfluencers', are turning chronic illness into a lifestyle trend & entrenching a culture of economic inactivity.' by Poppy Coburn, featuring Suzanne O'Sullivan. #longcovid #pwME #POTS
It is disheartening & predictable to see Suzanne O’Sullivan once again given a platform to promote psychosomatic explanations for chronic illness — this time in a Telegraph article attacking disabled people as influenced by social media, identity and attention. There is a fundamental problem with this framework: it creates a self-reinforcing evidential trap. If patients accept a psychosomatic explanation, it confirms the theory. If they reject it, their distress is interpreted as evidence that they are psychologically invested in being ill. If they seek support from other patients, that's “social reinforcement”.
2 82 182
Tom Kindlon
@tomkindlon.bsky.social
12 months ago
"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)" batemanhornecenter.org/wh…. New @batemanhornecenter.bsky.social blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as #MECFS & #POTS
Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions

batemanhornecenter.org

Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions

When The Lancet Rheumatology published Dr. Brittany Adler’s essay, Expanding the Rheumatology Lens: Should We Embrace POTS and Post-Infectious Syndromes?, it captured a reality many in the field have…
2 52 167

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