#dysautonomia is an active hashtag on Bluesky. In the last 30 days, 22 people shared 28 posts with it — around 1 a day. Activity is up 0% versus the previous week, peaking on Jul 15 with 3 posts.

Posts with #dysautonomia

Honest and Unfiltered

@momazonrises.bsky.social

over 1 year ago

I would love to connect with some people in the chronic illness community. I’m trying to get a group together for weekly support Zoom calls. Drop a comment if you are interested. #spoonie #Dysautonomia #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens #ILD

50 62 230

Honest and Unfiltered

@momazonrises.bsky.social

about 1 year ago

#ProudBlue I am immunocompromised & suffer from crushing fatigue. It would be almost impossible for me to attend a protest. This video means a lot to me. I really want to be hitting the pavement & often feel guilty that I can’t do it. #mecfswarrior #Dysautonomia #chronicillness #Mecfs

Jennifer C @thejenniwren.teamlh.social

1/3 Hey, if you’re not able to attend #NoKings events in person—whether it’s because of chronic pain, disability, mental health, caregiving, work, or just needing rest—you don’t owe anyone an apology. Your voice matters. Your safety matters. And you are still a powerful part of this movement. 💙

17 76 220

Honest and Unfiltered

@momazonrises.bsky.social

over 1 year ago

#ProudBlue Infusion day. Time to shut down my immune system again. Will treatments like this soon be banned here under RFK Jr? Definitely concerning to me. #mecfswarrior #interstitiallundisease #spoonie #youdontlooksick #Dysautonomia #mecfs #chronicillness #invisibleillness #sjogrens

23 41 169

Gina Bolton

@ginabolton.bsky.social

over 1 year ago

Also known as, “Hanging in there!” 😬🤣 ♿️ #disability #chronicillness #dysautonomia #pots #fibromyalgia #cancer

Picture of a broken sink with faucet, pipes and part of porcelain around drain. Very dirty bathroom.

4 20 155

Gina Bolton

@ginabolton.bsky.social

over 1 year ago

Be kind… ♿️ #chronicillness #fibromyalgia #pots #dysautonomia

0 40 144

The Real McCoy

@rippermd41.bsky.social

over 1 year ago

I keep seeing people in patient groups use ChatGPT like it's an encyclopedia or search engine. Please don't do this. It's built to simulate our language patterns, not to provide factual information. #EDS #Dysautonomia #MECFS

7 21 125

Emily Johnson

@emilyrj.bsky.social

over 1 year ago

Many people assume they’re in perimenopause/menopause due to temperature dysregulation and sweating dysfunction But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist

8 22 104

OhTWIST

@ohtwist.bsky.social

over 1 year ago

Welcome new followers ("beeps"? BlueSky peeps?) glad you found me. I look forward to sharing all things #hypermobile #EhlersDanlosSyndrome #EDS #hEDS #HSD #POTS #MCAS #Dysautonomia etc with you. Also #autism #autistic #ADHD #AuDHD as co-occurring for some as well. #NEISvoid Https://ohtwist.com

7 9 69

Ralf Wittenbrink

@ralfwittenbrink.bsky.social

over 1 year ago

🚨#POTS und andere häufige autonome Störungen SIND KEINE funktionellen neurologischen Störungen (#FND) „In den letzten vier Jahren von #COVID19 und #LongCOVID, hat ein erneuertes Interesse am posturalen orthostatischen Tachykardiesyndrom (POTS) und … #MECFS #CovidIsNotOver #Dysautonomia #SARSCoV2

Screenshot Post auf X

S Blitshteyn MD, FAAN, Dysautonomia Cl... ® @dysclinic
OUR NEW PAPER IS HERE! #POTS and other common autonomic disorders ARE NOT functional neurologic disorders (#FND). As a group of 9 co-authors, all experts in POTS and comorbidities, we needed to set the record straight. !!
@Dysautonomia @AASAutonomic

1 23 62

Candace D.

@diaryofasickgrl.bsky.social

almost 2 years ago

You ever do this? 😂😅 #POTS #dysautonomia #ehlersdanlossyndrome #chronicillness

12 8 60

Helma

@helma.bsky.social

over 2 years ago

📍Kurze Erinnerung: Ab heute kann #PoTS in Deutschland mit der ICD Schlüsselnummer G90.80 von Ärzt*innen angegeben werden. www.pots-dysautonomia.net/pressemittei... #POTS #Dysautonomie #dysautonomia #MECFS #EDS #SFN #Sjögren #Postcovid

www.pots-dysautonomia.net

ICD-10-GM-Code PoTS G90.80

Posturales Tachykardiesyndrom erhält Kodierziffer in Deutschland in der ab 2024 gültigen ICD 10-Version „PoTS und andere Dysautonomien e.V.“ erreicht großen Meilenstein für die Patientenverso...

0 42 57

tae's ALIEN⁷ toof fairy 🧚🏼‍♀️

@taetaetoofs.bsky.social

over 1 year ago

I finally finished the manual wheelchair set up 🥹 I gave her a splash of Hobi core to complement her borahae coloured push rims/spokes #disabledsky #btsarmy #dysautonomia

side view of wheel with purple push rims and rainbow coloured spoke covers and purple wheel slipper covering the wheel

same wheel minus the purple wheel slipper, so the black wheel is visible underneath

2 4 48

@og-banannibal.bsky.social

about 15 hours ago

By now I've pretty much lost that succulent liter of IV fluids I got on Wednesday, and oh how I miss it. Jonesin for another hit; boost my blood volume, baby! #pots #dysautonomia #Ringersfanclub

0 0 1

U of U Neurology

@uofuneurology.bsky.social

1 day ago

Early Bird Registration for POTS & Beyond 2026 is Open! This year's conference highlights interdisciplinary care with expert-led sessions for healthcare providers, patients, and caregivers. 🔗 bit.ly/3ZDUoko #POTS #Dysautonomia #MedicalEducation #Healthcare

0 1 2

EOS Network

@charityeos.bsky.social

5 days ago

We've long known that #EosinophilicOesophagitis (EoE) can look very different between patients. Now, a new study confirms this by identifying a distinct subtype of #EoE. Learn more about this subtype👉https://www.eosnetwork.org/dysautonomia-and-joint-hypermobility-as-a-subtype-of-eoe #Dysautonomia

0 1 0

EDSisSUCHaMESS

@edsissuchamess.bsky.social

5 days ago

I made the mistake of running errands with that guy today. It’s hot out, so now I get to deal with my body’s inability to control its temperature for the next three hours as I simultaneously sweat and shiver. Stupid #dysautonomia 🙄🤬

2 0 6

SylviJinx | Narcolepsy, MCTD, EDS

@sylvijx.bsky.social

6 days ago

Rava did so well on her first public outing! I was SO NERVOUS but she handled a brief trip to a lumbar store. She immediately fell asleep on me after. I'm so proud of her 🥺 #pitbulls #servicedog #disabled #spoonie #mctd #eds #narcolepsy #dysautonomia #pots

A black and white grey pitbull mix wearing a pink service animal vest asleep on a grey couch

1 0 2

Dr Ben King 🌍

@benking01.bsky.social

10 days ago

So it's taxis BOTH WAYS as I meet a friend this evening 😊 Today has mostly been a horizontal day. Only a couple of PacePoints used and hardly any moving around 🙏 #Pacing to avoid the debilitating #PEM symptoms linked to my #Dysautonomia of #LongCovid 🙏

2.6 out of today's 22 Pace Points used today

1 0 2

Dr Ben King 🌍

@benking01.bsky.social

12 days ago

... Kubios gives a wealth of Heartrate Variability data. I wish I understood it all! Headline: VERY low Readiness today. RMSSD is much reduced. Another day of quiet contemplation is seemingly on the cards 🙏 #Strain in my foot interacting with my #LongCovid #Dysautonomia??

Lots of data from Kubios. Including Very Low readiness of 20%.

1 0 0

torin🌸(they/them)

@solanaceaemourning.bsky.social

13 days ago

#dysautonomia friends! Any advice for someone who has autonomic dysfunction episodes that sometimes require laying down when they occur?? Specifically in public?? I don't really know how to handle it, especially with my AuDHD and social anxiety. :/

0 0 0

SpoonieTV 📺 ✨Meadow✨🎥 🏳️‍🌈👻🎄🥄📝💌♿🎨📷🍍

@meandmyremote.bsky.social

14 days ago

at our next "Is it MCAS?" chat. #MCAS #Spoonie #Dysautonomia

1 0 2

Merrydholl

@maryeilmicdom.bsky.social

15 days ago

Please show your support for people living with Postural Tachycardia Syndrome by filling out this quick form that will email your MP. It takes less than 60 seconds and really can make a difference: potsuk.eaction.org.uk/potsedm #POTS #Dysautonomia #MECFS

potsuk.eaction.org.uk

Sign the EDM for Postural Tachycardia Syndrome

0 6 11

Jazz

@hackerotticus.bsky.social

17 days ago

New POTS study shows pre-pandemic POTS and Long COVID POTS share virtually identical immune profiles, both driven by persistent inflammation and active NLRP3 inflammasome pathways. #dysautonomia

www.mdpi.com

1 0 1

Long Covid Journey

@longcovidjourney.bsky.social

18 days ago

What if standing up was the hardest exercise your body does all day? For many with Long COVID, it can be. Why? 👇 longcovidjourney.com/why-…. #LongCOVID #pots #dysautonomia

longcovidjourney.com

Why Do I Feel Better When I Lie Down? Long COVID, POTS & Blood Flow Explained

Do you ask yourself: Why do I feel better when you lie down? Discover how Long COVID, POTS, blood pooling and orthostatic intolerance affect blood flow, and why lying flat can quickly relieve symptoms...

1 1 10

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