#Dysautonomia is an active hashtag on Bluesky. In the last 30 days, 26 people shared 42 posts with it — around 1 a day. Activity is down 36% versus the previous week, peaking on Aug 25 with 4 posts.

Posts with #Dysautonomia

Honest and Unfiltered

@momazonrises.bsky.social

almost 2 years ago

I would love to connect with some people in the chronic illness community. I’m trying to get a group together for weekly support Zoom calls. Drop a comment if you are interested. #spoonie #Dysautonomia #mecfs #chronicillness #invisibledisability #invisibleillness #sjogrens #ILD

50 62 230

Honest and Unfiltered

@momazonrises.bsky.social

over 1 year ago

#ProudBlue I am immunocompromised & suffer from crushing fatigue. It would be almost impossible for me to attend a protest. This video means a lot to me. I really want to be hitting the pavement & often feel guilty that I can’t do it. #mecfswarrior #Dysautonomia #chronicillness #Mecfs

Jennifer C @thejenniwren.teamlh.social

1/3 Hey, if you’re not able to attend #NoKings events in person—whether it’s because of chronic pain, disability, mental health, caregiving, work, or just needing rest—you don’t owe anyone an apology. Your voice matters. Your safety matters. And you are still a powerful part of this movement. 💙

17 76 220

Honest and Unfiltered

@momazonrises.bsky.social

over 1 year ago

#ProudBlue Infusion day. Time to shut down my immune system again. Will treatments like this soon be banned here under RFK Jr? Definitely concerning to me. #mecfswarrior #interstitiallundisease #spoonie #youdontlooksick #Dysautonomia #mecfs #chronicillness #invisibleillness #sjogrens

22 41 168

Gina Bolton

@ginabolton.bsky.social

almost 2 years ago

Also known as, “Hanging in there!” 😬🤣 ♿️ #disability #chronicillness #dysautonomia #pots #fibromyalgia #cancer

Picture of a broken sink with faucet, pipes and part of porcelain around drain. Very dirty bathroom.

4 20 156

Gina Bolton

@ginabolton.bsky.social

almost 2 years ago

Be kind… ♿️ #chronicillness #fibromyalgia #pots #dysautonomia

0 40 149

The Real McCoy

@rippermd41.bsky.social

over 1 year ago

I keep seeing people in patient groups use ChatGPT like it's an encyclopedia or search engine. Please don't do this. It's built to simulate our language patterns, not to provide factual information. #EDS #Dysautonomia #MECFS

7 21 126

Emily Johnson

@emilyrj.bsky.social

almost 2 years ago

Many people assume they’re in perimenopause/menopause due to temperature dysregulation and sweating dysfunction But these are also #dysautonomia issues under #POTS and #OI, caused by Covid and other infections If hormone labs show no menopause/perimenopause, please see a dysautonomia specialist

8 22 104

OhTWIST

@ohtwist.bsky.social

almost 2 years ago

Welcome new followers ("beeps"? BlueSky peeps?) glad you found me. I look forward to sharing all things #hypermobile #EhlersDanlosSyndrome #EDS #hEDS #HSD #POTS #MCAS #Dysautonomia etc with you. Also #autism #autistic #ADHD #AuDHD as co-occurring for some as well. #NEISvoid Https://ohtwist.com

7 9 69

Ralf Wittenbrink

@ralfwittenbrink.bsky.social

almost 2 years ago

🚨#POTS und andere häufige autonome Störungen SIND KEINE funktionellen neurologischen Störungen (#FND) „In den letzten vier Jahren von #COVID19 und #LongCOVID, hat ein erneuertes Interesse am posturalen orthostatischen Tachykardiesyndrom (POTS) und … #MECFS #CovidIsNotOver #Dysautonomia #SARSCoV2

Screenshot Post auf X

S Blitshteyn MD, FAAN, Dysautonomia Cl... ® @dysclinic
OUR NEW PAPER IS HERE! #POTS and other common autonomic disorders ARE NOT functional neurologic disorders (#FND). As a group of 9 co-authors, all experts in POTS and comorbidities, we needed to set the record straight. !!
@Dysautonomia @AASAutonomic

1 23 62

Candace D.

@diaryofasickgrl.bsky.social

almost 2 years ago

You ever do this? 😂😅 #POTS #dysautonomia #ehlersdanlossyndrome #chronicillness

12 8 60

Helma

@helma.bsky.social

over 2 years ago

📍Kurze Erinnerung: Ab heute kann #PoTS in Deutschland mit der ICD Schlüsselnummer G90.80 von Ärzt*innen angegeben werden. www.pots-dysautonomia.net/pressemittei... #POTS #Dysautonomie #dysautonomia #MECFS #EDS #SFN #Sjögren #Postcovid

www.pots-dysautonomia.net

ICD-10-GM-Code PoTS G90.80

Posturales Tachykardiesyndrom erhält Kodierziffer in Deutschland in der ab 2024 gültigen ICD 10-Version „PoTS und andere Dysautonomien e.V.“ erreicht großen Meilenstein für die Patientenverso...

0 42 57

tae's toof fairy⁷ 🧚🏼‍♀️

@taetaetoofs.bsky.social

over 1 year ago

I finally finished the manual wheelchair set up 🥹 I gave her a splash of Hobi core to complement her borahae coloured push rims/spokes #disabledsky #btsarmy #dysautonomia