#EDS is an active hashtag on Bluesky. In the last 30 days, 63 people shared 189 posts with it — around 6 a day. Activity is down 10% versus the previous week, peaking on Jul 30 with 11 posts.

Posts with #EDS

Chronic Illness Humor

@chronicillness.bsky.social

over 1 year ago

Source: eds.hannahlouise on Insta Chronic Illness isn't easy #chronicillness #chronicillnessmemes #eds

Source: eds.hannahlouise on Insta

woman looking hopeful "so we've finally found what's wrong with you after all this time"

woman looking grossed out "you've got a chronic illness, we don't know why it occurs or how to treat it. You'll be in pain most of your life and suffer with other random symptoms, don't forget the fatigue that'll make you want to stay in bed forever but you'll be expected to carry on as normal"

13 61 330

Patients with Power

@ptswithpower.com

over 1 year ago

To defend ourselves from medical gaslighting and bad treatment by doctors, patients are told “don’t be afraid to speak up,” “stand up for yourself,” “advocate!” Have you ever had to advocate for yourself in a medical appointment, only to be treated WORSE because of it? #neisvoid #eds #pwme #pots

44 51 254

Chronic Illness Humor

@chronicillness.bsky.social

over 1 year ago

#eds #ehlersdanlos #heds

a bunch of skeletons, all the same (gay, straight, religious, atheist) and then the last skeleton is all wonky and it's labeled 'Ehlers Danlos')

9 24 230

Chronic Illness Humor

@chronicillness.bsky.social

over 1 year ago

My Angry Joints / Connective Tissue Disorder #eds #rheumatoidarthritis #mctd #lupus

My Angry Joints
We are short-staffed. Please be patient with the connective tissues who did show up. *eyeroll* nobody wants to work anymore.

5 29 217

SPROUT 🌱🫒

@sproutwiki.bsky.social

almost 2 years ago

🌈🌤️ Lethabo #ocsky ! He/they • Autistic • H-EDS #disabledartist #eds

An image of a nonbinary black person standing 3 different times. He has short locs with rainbow beads, glasses, and some moles covering their face. They have yellow noise cancelling headphones, and a yellow star chew necklace. They have an off-white t-shirt with rainbow stripes across the breast part. He is wearing a light blue backpack with some charms hanging off the bottom. In the first image, he is wearing a neck brace and wrist brace, with KT tape for shoulder support. He has rainbow vertical striped high-waisted pants, and blue sneakers. The second image he has mustard yellow forearm crutches and does not have the braces on, instead have a compression glove and compression ankle brace. In the third image he has a rollator that is decorated with fake leaves. It is navy blue and black, with a red bag underneath. End text

3 59 212

Chronic Illness Humor

@chronicillness.bsky.social

over 1 year ago

#eds #heds #edsmemes

DOCTOR: you can't dislocate your hips. that's impossible

EDS PATIENT: bro, hold my gatorade

17 17 169

Chronic Illness Humor

@chronicillness.bsky.social

over 1 year ago

Ahhh Joint Pain #jointpain #rheumatoidarthritis #eds

Top 3 traitors:
3.Brutas
2.Judas
1.My joints

5 11 151

The Real McCoy

@rippermd41.bsky.social

over 1 year ago

I keep seeing people in patient groups use ChatGPT like it's an encyclopedia or search engine. Please don't do this. It's built to simulate our language patterns, not to provide factual information. #EDS #Dysautonomia #MECFS

7 21 125

It's ME(Jaime)

@exceedhergrasp1.bsky.social

9 months ago

Not knowing about PEM is proof positive you don't know IACCs. Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.

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