Bluesky Β· Hashtag

#EDS

138
posts Β· 30d
50
users
5
posts / day
2.8
posts / user
-8% vs last week

#EDS is an active hashtag on Bluesky. In the last 30 days, 50 people shared 138 posts with it β€” around 5 a day. Activity is down 8% versus the previous week, peaking on Sep 14 with 8 posts.

#EDS posts per day (last 30 days)

Posts with #EDS

Patients with Power
@ptswithpower.com
almost 2 years ago
To defend ourselves from medical gaslighting and bad treatment by doctors, patients are told β€œdon’t be afraid to speak up,” β€œstand up for yourself,” β€œadvocate!” Have you ever had to advocate for yourself in a medical appointment, only to be treated WORSE because of it? #neisvoid #eds #pwme #pots
44 51 254
The Real McCoy
@rippermd41.bsky.social
over 1 year ago
I keep seeing people in patient groups use ChatGPT like it's an encyclopedia or search engine. Please don't do this. It's built to simulate our language patterns, not to provide factual information. #EDS #Dysautonomia #MECFS
7 21 126
It's ME(Jaime)
@exceedhergrasp1.bsky.social
10 months ago
Not knowing about PEM is proof positive you don't know IACCs. Even if you're not studying #MECFS, omitting the possibility of PEM in a trial for #LongCOVID (where many meet criteria for #MECFS) or for common comorbidities, like fibro, hypermobility disorders like #EDS, or #POTS is in error.
1 15 124
Lucie
@zebralucie.bsky.social
5 days ago
Snazim se hledat radost v malickostech, je to dnes potreba. Dorazil nam darecek az z Japonska. Plany na zitrek a sobotu jsem musela zrusit a snazim se utesovat tim, ze se dnes dokazu i trochu hybat a celkova bolest se vetsinu casu pohybuje kolem tradicnich 7/10. #eds #delamcomuzu
1 0 19

Posts are pulled live from Bluesky and cached briefly. Posts with content labels are hidden.