#SevereMEDay is an active hashtag on Bluesky. In the last 30 days, 12 people shared 24 posts with it — around 1 a day. Activity is up 533% versus the previous week, peaking on Aug 7 with 10 posts.
Adam @abrokenbattery.bsky.social
Content warning Today is #SevereMEDay the birthday of Sophia Mirza. Sophia was wrongfully sectioned for refusing to attend a clinic that treated patients with Graded Exercise Therapy. The mistreatment during her stay resulted in a dramatic deterioration and she later died.
link.springer.com
Transdisziplinäres Expert:innen-Statement: Pflegeleitfaden für Menschen mit schwerem ME/CFS in der häuslichen Versorgung - Wiener Medizinische Wochenschrift
Background Many of those affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have significant care needs. However, post-exertional malaise, the defining feature of ME/CFS, means th...
Whitney Dafoe @whitneydafoe.bsky.social
The Compassion Gap In this video I explore the gap in compassion between ME/CFS deaths and suffering and the death and suffering of other people whom the world rallies around, fights for, and supports. And what the root cause might be. ————————————— #MECFS #SevereMECFSawarenessDay #pwME #spoonie
25megroup.org
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social
My dear brother Lukas Völker has written a song for his niece Mila who has been living with very severe ME/CFS for six years. The line “only three words” is not a metaphor. For many years, three words – no more than six syllables – were the most we could say to Mila in a good day. #SevereMEDay
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