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Bluesky · Hashtag
#SevereME
90
posts · 30d
29
users
3
posts / day
3.1
posts / user
+ 163% vs last week
#SevereME is an active hashtag on Bluesky. In the last 30 days, 29 people shared 90 posts with it — around 3 a day. Activity is up 163% versus the previous week, peaking on Aug 7 with 14 posts.
#SevereME posts per day (last 30 days)
Related tags
Tags most often used together with #SevereME.
Posts with #SevereME
An image on severe ME to mark severe ME day
#SevereME #SevereMEDay #SevereMECFS
#SevereCFS #VerySevereME
1 23 46
Today is #SevereME day.
Please take a look at and share the thread below: help teach people about severe ME.
It's ME(Jaime) @exceedhergrasp1.bsky.social
Today, Aug 8, is #SevereMEDay. Today we discuss severe-presenting #MECFS and remember people with severe ME. #MECFS is an infection-associated chronic illness, which means it is often, but not always, kicked off by an infection. ~Half of #LongCOVID cases at 6 mo meet the dx criteria for ME/CFS. 🧵
1 37 38
Ahead of #SevereMEDay, we are launching the Severe ME Inquiry Report, exposing systemic failings in care, support and education for people with severe and very severe ME.
Read today:
www.actionforme.org.uk/th….
#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #SevereME #VerySevereME
4 23 38
In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026!
Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork.
ow.ly/FSXw50ZxJTC
#SevereME #art #artist
1 26 33
1 14 22
Aktion heute vor dem Sozialministerium 🇦🇹
"Für alle, die wegen ME und Unterversorgung sterben mussten. Und alle, die weiterhin "lebendig begraben" und unsichtbar gemacht auf Versorgung warten."
Danke an alle, die da waren.
#SevereME #MillionsMissing
1 8 25
Tomorrow is Severe ME Day. We are honored to help amplify the stories of those with severe ME. It does help us see it if you tag us: @meactnet.
hashtags samples:
#SevereME #SevereMEday #SevereMECFSAwareness
Take care of you even if that means taking a break this year. Holding all in love.
1 16 22
Heute ist #SevereME Awarenessday. Kommt in Köln vorbei zu unserer LiegendDemo mit Trauergang!
4 7 17
Today is #severeME day. An illness that is all too common & debilitating yet misunderstood.
25% of ME sufferers are severe. We are housebound or bedbound. Unable to work or study. Trapped in a house or in a single room. Some living in the dark & quiet.
This has been my reality for 17 years #pwME
1 4 16
For severe ME day
From Mahli Quinn Art's "Severe and very severe ME comic" (link in next comment)
#SevereME #SevereMEDay
1/
1 6 16
A quick last minute surprise today- our volunteer @corywysz.bsky.social is streaming the Severe ME Artists Project on his channel- including reading the written work! Thanks CoRy.
Watch CoRyWysz with me on Twitch! www.twitch.tv/corywysz?sr=a
#SevereME #SevereMEDay
0 1 2
💙 Today is Severe ME/CFS Awareness Day.
Severe ME/CFS can leave people bedbound, unable to tolerate light or sound, and dependent on others for basic care.
This publication highlights why greater recognition and care are urgently needed: bit.ly/4fi8aRp
#SevereME #MECFS
0 1 5
View from the Trenches of #MyalgicEncephalomyelitis latest article covers #SevereME day for 2026.
Includes news and resources.
open.substack.com/pub/col….
open.substack.com
Recognizing Severe Myalgic Encephalomyelitis
August 8, 2026
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Learn more about Severe ME here:
ow.ly/gVV650ZxShS
#SevereMEDay #SevereME #SevereMECFS #SevereMEAwareness
ow.ly
Severe ME - World ME Alliance
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Quick pose bcI don’t want to stand still when don’t have to! #OrthostaticIntolerance
Superman stance 4 @renegaderesearch.bsky.social #InnovationInn with muscle @MoxyMonitor. Hoping 4 good PEM data
SOS bc #millionsmissing need more help, mild- #severeME @meactnet.bsky.social
#severeMEday #MECFS
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and the reality is, i’m not nearly as ill as some people with #SevereME. i’m not even at *my* worst. there are people who can’t tolerate any light, for whom moving their arm even an inch can cause a devastating flare up of symptoms. people who can’t read any amount of text without crashing. (4/4)
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a day even!
Sometimes I look at how much improvement I’ve made and I’m like oh I’m not severe anymore… but I am. Just… less so that before.
This was a total ramble. Just trying to give a real life example of one persons version of #SevereME
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Transdisciplinary Expert Statement: care guide for people severely affected by ME/CFS in home-based care
link.springer.com/article….
@kathrynhoffmann.bsky.social et al.
#ME/CFS #pwME #SevereMEDay
#SevereME #ICDG93.3 #ICDG93.32 #ICD8E49
link.springer.com
Transdisziplinäres Expert:innen-Statement: Pflegeleitfaden für Menschen mit schwerem ME/CFS in der häuslichen Versorgung - Wiener Medizinische Wochenschrift
Background Many of those affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have significant care needs. However, post-exertional malaise, the defining feature of ME/CFS, means th...
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Children too unwell to reach healthcare need healthcare that can reach them.
Children unable to attend school still need equitable opportunities to participate in education.
A child’s world may become smaller because of illness.
Our systems must not make it smaller still.
#SevereME #LongCovid
0 1 5
COVID-19 can trigger ME, and children living with ME, Long Covid and overlapping illnesses can experience many of the same symptoms and barriers to care, education and participation.
Absence is not absence of need.
#SevereME #LongCovid
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