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Bluesky · Hashtag
#SevereME
90
posts · 30d
29
users
3
posts / day
3.1
posts / user
+ 163% vs last week
#SevereME is an active hashtag on Bluesky. In the last 30 days, 29 people shared 90 posts with it — around 3 a day. Activity is up 163% versus the previous week, peaking on Aug 7 with 14 posts.
#SevereME posts per day (last 30 days)
Related tags
Tags most often used together with #SevereME.
Posts with #SevereME
An image on severe ME to mark severe ME day
#SevereME #SevereMEDay #SevereMECFS
#SevereCFS #VerySevereME
1 19 38
Ahead of #SevereMEDay, we are launching the Severe ME Inquiry Report, exposing systemic failings in care, support and education for people with severe and very severe ME.
Read today:
www.actionforme.org.uk/th….
#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #SevereME #VerySevereME
3 18 28
Aktion heute vor dem Sozialministerium 🇦🇹
"Für alle, die wegen ME und Unterversorgung sterben mussten. Und alle, die weiterhin "lebendig begraben" und unsichtbar gemacht auf Versorgung warten."
Danke an alle, die da waren.
#SevereME #MillionsMissing
1 8 25
Tomorrow is Severe ME Day. We are honored to help amplify the stories of those with severe ME. It does help us see it if you tag us: @meactnet.
hashtags samples:
#SevereME #SevereMEday #SevereMECFSAwareness
Take care of you even if that means taking a break this year. Holding all in love.
1 15 19
5/5
pharmakologischer Forschung:
eine medizinethische Auseinandersetzung mit der desolaten Versorgung,
die Anerkennung gesellschaftlicher Verantwortung und endlich konkrete Hilfe für
ME/CFS-Betroffene.
@bmg-bund.bsky.social
#PEM #SevereMe #VerySevereMe
#MeKills #NoGET
#Stigmatisierung
4 11 159
It’s August now and the official Severe ME Awareness Day is the 8th of August. In past years our community has talked about how a single day for severe ME is not enough. 1/5
#SevereME #MECFS #pwME #Photography
nikosuvisto.com/this-is-h….
1 15 37
„Bitte, bitte helfen Sie mir!“
Ein Satz,den viele ME/CFS
Betroffene nur noch schriftlich äußern können –
weil auch Sprechen zu
#PEM Crashs führen kann.
Die Unterstellung,
dieser Zustand sei
„psychisch bedingt“,
ist nicht nur absurd -
sondern lebensgefährlich.
#MEcfs #ME #SevereME #PEM #MEKills
5 53 128
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME.
It is one of the only places where the sickest patients can receive specialised care.
We need this everywhere!!
#pwme #myalgicE #millionsmissing #severeME
6 52 124
(4/4)
Danke an die anonymen Helfer, dass ihr meine Aufklärungsarbeit so kraftvoll in die analoge Welt getragen habt! Ihr macht das Unsichtbare sichtbar.
#SevereMEAwarenessDay #RosaCaerulea #MECFS #SevereME #Esslingen #EsslingenCity #StummerProtest #Gedenken #LearnAboutME
0 0 12
In honor of #SevereMEday, #MEAction is honored to share the Severe ME Artists Project 2026!
Over 100 of you submitted photos, drawings, writing, and videos of your work! We are thrilled to share so many amazing and powerful pieces of artwork.
ow.ly/FSXw50ZxJTC
#SevereME #art #artist
0 6 8
Today is August 8, Severe Myalgic Encephalomyelitis (ME) Awareness Day. 💙
Solidarity with all those suffering a “living death”. My Long COVID triggered ME/CFS, but I’m lucky, it’s mild. Such a cruel disease.
Highly recommend Jennifer Brea’s documentary, UNREST.
#MECFS #MEawareness #SevereME
unrest.film
Unrest Documentary – Jennifer Brea & ME/CFS Awareness
Explore the 2017 documentary Unrest, directed by Jennifer Brea, which documents life with ME/CFS and a global movement for recognition and research.
0 0 2
Emily, the mc, is a 19 year old witch with severe ME. She’s based on my experiences of getting ill as a teen. Trapped in a house and not able to leave. Abandoned by the world and watching life pass her by. But with added magic and murder and ghosts!
#severeME #pwME
www.goodreads.com/book/sh….
www.goodreads.com
Haunting of a Witch
A chronically ill witch living in a haunted house. A m…
1 0 1
Today is #severeME day. An illness that is all too common & debilitating yet misunderstood.
25% of ME sufferers are severe. We are housebound or bedbound. Unable to work or study. Trapped in a house or in a single room. Some living in the dark & quiet.
This has been my reality for 17 years #pwME
1 2 6
It’s the evening of #SevereMEDay and I am absolutely exhausted.
Hopefully I’ve spread some awareness today.
Have had some happy tears as some first donations have come in.
There is still kindness in the world 💙🥲
#SevereME #MECFS #pwme #NEISvoid #ChronicIllness #ChronicPain
gofund.me/097f8b8bc
gofund.me
Donate to Bedridden and in agony, help Emma access treatment, organized by Emma Jane
Hi, I’m Emma. I’m housebound and mostly bedridden with ME/CFS, Fibromyalg… Emma Jane needs your support for Bedridden and in agony, help Emma access treatment
0 5 6
Det är ironiskt och inhumant att jag måste klara av att göra massiva mängder arbete med sånt som jag varken har ork eller kognitiv kapacitet till, helt ensam och utan stöd, för att eventuellt i en hypotetisk framtid få hjälp med just sådana saker. #autism #adhd #PersonligAssistans #SevereME
2 2 4
Post this every year for #severeMEAwarenessDay, because we’re still waiting for biomedical research and treatment options. Scandalous!
#severeME #pwme
0 0 0
Thanks to everyone who contributed to such a powerful account. @andyburnham.bsky.social spoke of govt investing in people’s success rather than paying for failure. A year on from #DecodeME results it’s time for serious investment in the research to address the cost to us all of #SevereME.
#MECFS
Action for ME @actionforme.bsky.social
Ahead of #SevereMEDay, we are launching the Severe ME Inquiry Report, exposing systemic failings in care, support and education for people with severe and very severe ME. Read today: www.actionforme.org.uk/the-more-ill... #MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis #SevereME #VerySevereME
0 5 7
For severe ME day
From Mahli Quinn Art's "Severe and very severe ME comic" (link in next comment)
#SevereME #SevereMEDay
1/
1 5 11
Reminder
Die schwerste Form von ME ( #MEcfs ) ist #VerySevereME und nicht #SevereME!
#SevereMEDay
me-pedia.org/wiki/Severe_...
me-pedia.org
Severe and very severe ME
0 6 11
Meistens,aber nicht immer, entsteht #severeME durch eine voran gegangene Infektion verschiedener Viren oder Bakterien. #PAIS
Prävention kann,gerade bei Krankheiten die über die Luft übertragen werden, durch saubere Innenraumluft und durch das tragen von Masken erfolgreich sein.
#maskup
#cleanair
0 3 9
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