#BleedingDisorders

This talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ buff.ly/fATZ0kR #BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing

🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️

👉 Read the guide: www.ehc.eu/wp-content/u... #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.

Pain that is named is pain that can be managed, together. That's the idea behind our new EHC guide, "I want to talk about my pain today!", launched on #WorldPatientSafetyDay today 🧵👇 #SafeCareForLife #BleedingDisorders

Read the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Thank you to everyone who shared their story with us. ❤️‍🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Behind our new guide, “I want to talk about my pain today!”, are the voices of people living with #BleedingDisorders, who generously shared what #Pain has really been like for them. 🧵👇 #WorldPatientSafetyDay #SafeCareForLife

👉 Read the guide: buff.ly/Fejz8aA #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.

This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease