#PatientVoice is an active hashtag on Bluesky. In the last 30 days, 14 people shared 26 posts with it — around 1 a day. Activity is up 25% versus the previous week, peaking on Aug 31 with 4 posts.

Posts with #PatientVoice

The Lily Foundation

@lilyfoundation.bsky.social

over 1 year ago

Yesterday we were proud to join the launch of the LifeArc Centre for Rare Mitochondrial Diseases - a major step forward in mito research We led a workshop on making complex science clear – because involving patients is key to success #mitochondrialdisease #mitoresearch #patientvoice #raredisease

0 7 26

GENIAL Horizon Europe

@genial-project.bsky.social

about 17 hours ago

Within GENIAL, ELPA brings patient perspectives into research, communication and awareness activities, helping shape prevention, education, healthcare access and policy for more inclusive and equitable care across Europe. #PatientVoice #ELPA #HealthEquity #PatientEngagement

0 1 2

North East & Yorkshire Genomics

@neygenomics.bsky.social

almost 2 years ago

👋Hi Bluesky! Follow us if you're interested in: #Genomics #Genetics #GeneticTesting #Cancer #RareDisease #RareConditions #NHS #Nursing #Midwifery #PrimaryCare #Pharmacogenomics #PatientVoice #PersonalisedMedicine #Paediatrics #DNA Road to Genome Podcast: ney-genomics.org.uk/about-genomi...

ney-genomics.org.uk

Listen to our Podcast - North East and Yorkshire Genomic Medicine Service

'The Road to Genome' is a new podcast series from North East and Yorkshire Genomic Medicine Service GMS about genomic medicine

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Bateman Horne Center

@batemanhornecenter.bsky.social

over 1 year ago

#MECFSAwarenessDay Support Group – Special Session! May 13 | 1pm MDT (75 min) We’ll tap into the collective wisdom of our community, plus, we'll show our ME/CFS Reflections video! Register now: loom.ly/ld3bOFc #PatientVoice

0 4 19

OncoDaily

@oncodaily.bsky.social

over 1 year ago

🌟Coming Soon 🌟 🌐 Global Health Dialogues with Princess Dina Mired—presented by OncoDaily! 🗓️First episode drops on February 4, in honor of the #WorldCancerDay. Be the first to listen! This episode is sponsored by Amgen. @amgen.bsky.social #OncoDaily #PrincessDinaMired #HealthEquity #PatientVoice

0 1 10

TCC Wales

@tccwales.bsky.social

3 months ago

Not every autistic person is the same. Not every eating disorder looks the same. One key message from our campaign is that support works best when we look beyond labels and listen to individual experiences. Person-centred care starts with understanding. #ARFID #Autism #Neurodiversity #PatientVoice

0 3 10

OncoDaily

@oncodaily.bsky.social

over 1 year ago

👉 Watch the full episode here: youtu.be/aEtBieaBU5g?... #GlobalHealthDialogues #PrincessDinaMired #OncoDaily #AMGEN #PublicHealth #GlobalHealth #HealthPolicy #NCDs #PatientVoice #WomenInGlobalHealth #Health #HealthInnovation #CancerControl #AccessToCare #Medicine

0 0 8

Bateman Horne Center

@batemanhornecenter.bsky.social

over 1 year ago

This ME/CFS Awareness Month, we’re creating a community video to show what life with #MECFS or #LongCOVID really looks like. Share your truth—photos, poems, video, or art—by May 11. It matters 💙 Submit here: loom.ly/nhkhUTU #PatientVoice #LifeWithChronicIllness

loom.ly

Kudoboard for ME/CFS Community | Kudoboard

Kudoboard is an online replacement for the greeting card that you pass around and sign!

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Gitte 🧿✨

@gitteilc.bsky.social

over 1 year ago

Excited that our team will be presenting at #MASCC25 Let’s make supportive care smarter, stronger, and more human 🧬 💪 💚 @coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc

0 3 8

Sammie McFarland

@sammiemc.bsky.social

over 1 year ago

To those who’ve been on this journey, thank you. To those who couldn’t stay, I’ve learnt from that too. And to everyone living this reality, we are strongest together. If our paths align, I'd love to hear more. #LongCovid #FiveYears #Ableism #ChronicIllness #PatientVoice #Advocacy

2 1 8

Bateman Horne Center

@batemanhornecenter.bsky.social

over 1 year ago

Join us for Peer Perspectives & Connections! Thurs May 15, 11:30 am MDT Topic: Writing about Pain & Pleasure with Allyson Maughan Register & receive event details! Everyone welcome, join at your comfort level. 🔗 Register: loom.ly/U7UnYdU #MECFS #LongCOVID #PatientVoice