www.cbsnews.com
RFK Jr.'s autism study to amass medical records of many Americans
The autism study is planning to link confidential data "with broad coverage in the U.S. population" in one place for the first time.
#PatientRights is an active hashtag on Bluesky. In the last 30 days, 12 people shared 21 posts with it — around 1 a day. Activity is down 71% versus the previous week, peaking on Aug 17 with 3 posts.
Tags most often used together with #PatientRights.
www.cbsnews.com
RFK Jr.'s autism study to amass medical records of many Americans
The autism study is planning to link confidential data "with broad coverage in the U.S. population" in one place for the first time.
It will be easy to fall into a pattern of dunking & reacting in these times. Performing disapproval can be a consuming pastime & it is not enough. Refuse to abandon vulnerable people. Build a rebellious culture of care. If you need help, @prisonculture.bsky.social and I wrote a book to assist you.
bookshop.org
thehill.com
youtu.be
A Promise
YouTube video by Riko Siempre, RN Ch.
www.dailyalpine.com
Doctors’ chamber challenges Vorarlberg patient advocate reform
Austria’s Medical Chamber has criticised plans to restructure Vorarlberg’s patient advocacy service, questioning its independence and raising concerns about quality and transparency, ORF reported. The planned changes would bring the service “closer to state politics”, the chamber said. The Vorarl…
justpaste.it
The War on Pain Care: The Dose You Cannot Measure
citizenportal.ai
Patient testimony: Kate Deneen says Massachusetts's limit forced her to seek care out of state
Kate Deneen, speaking in her personal capacity, described learning at nearly 33 weeks that her fetus had suffered a catastrophic stroke and said Massachusetts's 24-week cutoff forced the family to travel out of state for care and pay thousands.
en.killbait.com
Long ER wait times and systemic challenges in Manitoba's healthcare system
Theresa Chanowski, daughter of Colleen Titanich, describes her mother's harrowing experience in Manitoba's emergency department. Diagnosed with stage four cancer in 2024, Titanich spent 21 hours in a hallway on a gurney after arriving at the Health Sciences Centre. Chanowski alleges the ER was overcrowded, with patients experiencing withdrawal symptoms and aggressive behavior toward staff. She criticized the lack of timely medical attention, stating her mother was not seen by a doctor for over 20 hours despite worsening pain. Manitoba health minister Uzoma Asagwara acknowledged systemic issues with wait times, attributing them to staffing shortages and capacity constraints. Chanowski advocates for separate facilities to address addiction-related ER cases, arguing they divert resources from vulnerable patients. The incident highlights ongoing challenges in Canada's healthcare system, particularly for terminally ill individuals facing prolonged waits and inadequate care. Manitoba officials have pledged to improve access but acknowledge progress will take time.
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