#MSLife

For others dealing with Multiple Sclerosis, because they or someone they know has been diagnosed with this crazy condition, I’ve created this custom feed for us. Pin 📌 it to your home to see what the #MS community is talking about. Use #mslife to contribute. Created with surf.social.

Simple flowers bring positive feelings, enjoying the #FlowerPower everyday of my #MSLife 🌞💗 🌱

My brain’s got more tabs open than a conspiracy theorist’s browser, and at least five are frozen. Started a blog post… forgot it existed. Twice. Mental misfires are the best #MSBrainFog #MSLife #WhoNeedsMemory mssucks.co/e

Last MRI (November) is “stable” That’s good news Less good is that they are going to start rationing MRIs for those with stable disease. I expect I will be offered one every 2 years I understand the finances, but “stable” can change very quickly #MSLife

So fatigued today All petrol has drained from my tank I’m fortunate in that I have fatigue in bursts & then it lifts again #MSLife

Morning from the UK. Mercifully cooler today. I loathe the heat - it sets off eyelid spasms & chin muscle fasciculations (a feeling I hate) I feel like I start resembling a tearful Popeye 😏 Have a good day #MSLife #MSFriday

#MSLife #MSFriday A relative with MS was involved in the trial for fampridine - she found it so helpful for her drop foot that she paid privately for it once off the trial I’m glad more people will be able to access it 🤞

T’ai chi in 30°. We were standing in shade. Managed it, huzzah! Time was I couldn’t have stood up in it but since Lemtrada, I seem to cope better #MSLife

There’d be an outcry if this was happening in other medical fields eg cancer #MSFriday #MSLife

I am having a very hard time recovering from this trip. My limbs feel like lead. My eyes want to close. The #fatigue is next level. I need to get over this. Fast. #ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks

If my immune system put as much effort into protecting me as it does into ruining my life, I’d probably be a superhero by now. #MSLife #MyImmuneSystemIsAnAsshole

Yup Plymouth lost all of its MS specialist neurologists last year, leaving 4 MS nurses to do…well, everything (I hear we do now have 1 new consultant) Neurology & neurosurgery waiting lists amongst the longest in the NHS. “Time Is Brain”, we say in #MSLife Not now, apparently