6 18 328
www.nytimes.com
A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate (Gift Article)
A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?
Bluesky · Hashtag
#FTD
54
posts · 30d
27
users
2
posts / day
2.0
posts / user
+ 6% vs last week
#FTD is an active hashtag on Bluesky. In the last 30 days, 27 people shared 54 posts with it — around 2 a day. Activity is up 6% versus the previous week, peaking on Jul 28 with 4 posts.
#FTD posts per day (last 30 days)
Related tags
Tags most often used together with #FTD.
Posts with #FTD
Hello BlueSky. One of our cofounders, Linde Jacobs, is profiled in The New York Times today. It’s a moving snapshot of what an FTD family goes through. Help us fight for therapies that can cure dementia for under 60s. #ftd #aftd #dementia #tau #alzheimers #mapt
www.nytimes.com/2024/12/2….
5 29 137
If I had to sum up, in simple terms, the long term effects of unmitigated C19 on my family-including myself-over these last 5 yrs, it's that they're-we’re-in various stages of disappearing. Cognitively, emotionally & physically. #LongCovid #LongCovidKids #FTD #ExtremeFarigue #Neuropathy #BrainFog
17 39 131
1 0 53
Rain sleet Snow
Extreme Heat
We resist fascism!
#FTD
#TeslaTakedown
#NoKings
#America250
#USA
Columbus Ohio Easton
5 8 48
The 8647 Band strikes again
Columbus Ohio, Easton Town Center, Tesla Dealership
#DeportElon
#TeslaTakedown
#NoKings
#IceOut
#FTD
1 1 11
Chemical compound clears cellular waste, protects neurons in model of frontotemporal dementia. Restoring autophagy is promising strategy for range of neurodegenerative diseases. medicine.washu.edu/news/c….
#FTD #dementia #science #neuroscience #NeuroSkyence
medicine.washu.edu
Chemical compound clears cellular waste in model of dementia | WashU Medicine
New research shows that restoring autophagy is a promising strategy for treating a range of neurodegenerative diseases.
0 23 37
lost my sister yesterday, once there was 5, now there are 4.
@wolverinebear.bsky.social
#FTD robs us of another bright life
myay she be at peace
😔
5 0 12
Dementia Comes in Many Forms. Alzheimer’s Is Just One. www.nytimes.com/2025/12/0….
#Alzheimers #dementia #LBD #FTD #LATE #VCID #neurology #neuroscience #NeuroSkyence
www.nytimes.com
Dementia Comes in Many Forms. Alzheimer’s Is Just One.
2 13 28
Patients go without needed treatment after government shutdown disrupts a telehealth program abcnews.go.com/Health/wireS...
#shutdown #Medicare #telehealth #aphasia #Parkinsons #FTD #Alzheimers #dementia
abcnews.go.com
Patients go without needed treatment after government shutdown disrupts a telehealth program
Bill Swick, who has a rare degenerative brain disease, has lost access to virtual speech therapy due to the federal government shutdown
0 23 28
Hey there BlueSky! 👋 I’m a newbie #academicsky postdoc here into all things #dementia #alzheimers #ftd #socialcognition #neuroskyence. Still finding my feet (wings?!) here but hoping to build a lil’ bsky fam. Hope to see you around! Here’s Gizmo because academia is better with cats. #catademics
4 0 27
Chap 61 is now up. Another sad chapter. It covers the immediate time frame right after Peggy passed away - cleaning out her memory care room, and planning her funeral and life celebration.
#Alzheimers #dementia #FTD #caregiver
fiveandahalfyears.net/cha….
fiveandahalfyears.net
Chapter 61 – The Immediate After – Five and a Half Years
0 0 0
¿Por qué Emma Heming sintió culpa al celebrar sus 50 con Bruce Willis? #EmmaHeming #BruceWillis #DemenciaFrontotemporal #FTD #Cuidadores #FamiliaWillis #Hollywood #Cine #SaludMental #HistoriasDeAmor #Celebridades #Actualidad #felizjueves #6deagosto
donporque.com
¿Por qué Emma Heming sintió culpa al celebrar sus 50 con Bruce Willis?
Emma Heming revela la culpa que sintió al cumplir 50 mientras cuida a Bruce Willis y recuerda cómo comenzó una historia marcada por el amor.
0 0 0
AFTD - Primary Progressive Apraxia of Speech (PPAOS)'
Primary Progressive Apraxia of Speech (PPAOS) is an #FTD disorder where the first, and sometimes only, sign is a gradual, worsening difficulty with speech.
Read more: www.theaftd.org/what-is-f….
1 0 0
Always good when the Cubs win, but it's even better when they beat the Dodgers and Skubal in his Dodger debut.
#FTD
#GoCubs
static.klipy.com
Chicago Cubs W Flag: Fly the W!
ALT: Chicago Cubs W Flag: Fly the W!
0 0 3
Chap 60 has now been posted. This was a difficult post to write.. the inevitable happened. It's still as sad today as it was two years ago.
I still have a few posts left, the aftermath, giving back, and a few more things.
fiveandahalfyears.net/cha….
#Alzheimers #FTD #caregiver #dementia
fiveandahalfyears.net
Chapter 60 – The End – Five and a Half Years
0 0 0
We're all with you. This happened with us as too, when my sister had #Alzheimers and #FTD .
1 1 0
Watch this space for key compelling facts on frontotemporal dementia.
#kissickfamilyfoundation #frontotemporaldementia #ftd #dementia #florida #georgia #healthcare #raredisease #familyphysicians #nurses #ems #psychologists #neurologists #police #firefighters
0 0 0
Dancing In The Face Of Death by Susan L. Koen, Ph.D.
After 38 years as business and life partners, Susan Koen and her partner, Barbara, navigated the journey of Barbara’s frontotemporal dementia ( #FTD ) diagnosis for four years.
Read about the book here: www.pennftdcenter.org/pos….
0 0 0
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