Shannon Sindorf

@shannonsindorf.bsky.social

I think I threw myself into a mild #ms flare by sitting outside at a block party in 100 degree (38C) heat for four hours last weekend. Everything is worse. The current is stronger against me. Not sure what to do. #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks

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A Chronic Voice

@achronicvoice.com

1 day ago

"How do I unwind for the evening?: A #HotShower, then dinner with a good movie or TV series. Some dessert or chocolate – I believe that every day should end on a sweet note (it’s a good excuse)!": buff.ly/Kff994J #ChronicIllness #spoonie #ChronicallyIll #ChronicLife #DayInTheLife #disabled

My Responses to “A Day in the Life” Linkup (What Does ‘Normal’ Even Mean?)

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SageNatural

@sagenatural.bsky.social

2 days ago

Housemate has been told she has to go with the FODMAP diet - and it has hacked a huge chunk out of what she was able to eat under existing restrictions. I would love some suggestions for good gluten free options for breads and pasta. (reskeets appreciated) #FODMAP #ChronicLife

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MS News Today

@msnewstoday.bsky.social

4 days ago

Chronic illness math: one errand = three hours of recovery #ChronicLife

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Shannon Sindorf

@shannonsindorf.bsky.social

4 days ago

In the infusion chair. Coming back for a whole other infused drug tomorrow. I have excellent veins, and that was probably the first time they struggled to get an IV in me. 0/10 did not enjoy. #ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune

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A Chronic Voice

@achronicvoice.com

7 days ago

"I decided to judge my #judgement. To #question my #thoughts before jumping to conclusions & to give people more benefit of the doubt. It will prob be a #lifelong process. But what I’ve realised is that I’ve been a much #happier person since doing this!": buff.ly/6VuaUOV #ChronicLife #throwback

buff.ly

August 2017: Missing a Stable Income & Striving Towards Healthier Habits

Read as I share about my chronic illness life in August 2017 — how I miss earning my own income, appreciating my pet birds and more.

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MS News Today

@msnewstoday.bsky.social

11 days ago

When you have a chronic illness, pacing yourself isn’t optional — it’s survival. #ChronicLife

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Shannon Sindorf

@shannonsindorf.bsky.social

11 days ago

Rough morning walk. My back was messed up and I was stiff from my MS. It was not a good combination. #ms #multiplesclerosis #chronicillness #mslife #chroniclife #autoimmune #mssucks

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A Chronic Voice

@achronicvoice.com

12 days ago

[New] "if you live with a #ChronicIllness or #disability, come check out the #August #WritingPrompts & join us if u r feeling up to it. We'd love to hear more about your life with chronic illness..how you're coping & what you'll be up to!": buff.ly/fIwTy9g #MondayBlogs #DisabledPeople #ChronicLife

August Writing Prompts For People with Chronic Illness and Disabilities — Confining, Draining, Delaying, Convincing, and Restoring. Participate at: A Chronic Voice .com

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Carrie Marshall - MySeveralWorlds.com

@carriekellenberger.bsky.social

12 days ago

"The true heartbreak of living with chronic illness is being forced to relive the worst moments of it over and over again." via @serenebutterfly at My Brain Lesion and Me 🔗 Read it: www.brainlesionandme.com/…. #Spoonie #ChronicIllness #ChronicPain #Disability #ChronicLife

www.brainlesionandme.com

Reliving Heartbreak: Life With A Chronic Illness –

Living with chronic illness is heartbreaking. Heartbreak that is repeated again and again as its worst moments are replayed over and over.

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MS News Today

@msnewstoday.bsky.social

13 days ago

The only thing predictable about chronic illness is its unpredictability. #ChronicLife

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ALS News Today

@alsnewstoday.bsky.social

13 days ago

Joy may look different now, but it still matters. #ChronicLife

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