Our general mix starter pack to help you find others in the community.
This is a starter pack to collate those involved in scientific Long Covid & ME research.
This starter-pack includes doctors, researchers & allies in the field of #LongCovid #MECFS and other related complex chronic illnesses. Non-comprehensive, but maybe a helpful start. If you wish to be removed, please let me know.
Im starting a list of those who advocate for improved air quality within schools and educational settings (indoor air quality) to share, to connect and to learn. It’s a work in progress so if there’s anyone missing who is regularly active, please feel free to DM #SafeAirSchools
Here's a bunch of people who I think do good Science Communication and who I've found over here. Give them a follow (and let me know if there are people over here who I've missed off).
Science-y / health people I follow on Bluesky
This is a starter pack pulling together Pediatric Long Covid researchers, parents/caregivers and advocacy groups. I also include clean air advocates and organizations because #CovidisAirborne. #LongCovidKids #PediatricLongCovid
The people leading change in race and health equality in the UK
It’s #ThereForME (and friends)!
Creating community, sharing information and working towards a brighter future for children and young people with Long Covid and related conditions. #LongCovid #LongCovidKids #MECFS #PoTS #PANS #PIMS #MISC #LongSky
Some of the doctors and health experts whose posts I always pay attention to.
ME/CFS and Long COVID voices worth following.
A bunch of people who you probably knew well from twitter who are now over here.
A mix of people I follow on BlueSky
Starter Pack list of people affected by Long Covid and ME/CFS and those advocating, treating, or providing research to those affected.
" Hi, I'm Rajesh Yadav, a journalist from India. I've worked as a hyper local head for digital at (bhaskar.com ) and former editor at India TV Digital. Currently, I'm working in the education sector. Looking forward to connecting with you all. Wishing you a great day! "
Long Covid
ME/CFS
Physician/scientists are increasingly becoming an endangered species and this is a major threat to continued medical progress (Jain et al, NEJM, 2019). This network of inspiring clinical academics offers a good place for young medical graduates to follow
People I followed or who followed me on Twitter connecting about COVID-19 / Long COVID
This is for those on their workout journey, from yoga to weight loss, rather you're a beginner or pro! Come share your journey.. You just may change someones life!
Just some of the individuals & organisations that support/help those of us with any of these #NEISVoid conditions #hEDS #EDS/#HSD #POTS/#OI #Dysautonomia #pwME #ME/CFS #MCAS #CCI #LongCovid #Covid #ND (List will alter). May we now grow in a better environment here to help find the less rocky route.
4th starter pack for #LongCovid and Covid conscious people researchers and more to follow on Bluesky. Non-exhaustive. Suggestions welcome. Likewise, if you're on it and don't wish to be on it, please let me know and I'll remove you. Thank you.
These are a few of my favourite feeds!