Comunidad SFC/EM

But this isn’t voluntary—imagine what it’s like when there’s no choice—when your entire life, your survival, is at stake every single day. There’s no room for error. 7/ 9

Every day, I have to take at least three 30-minute rest periods, lying completely still with my eyes closed, on top of some smaller rest periods. There’s no other option, without that rest, my symptoms would worsen. 2/9

Lately, I’ve started using hearing protection again while resting—it helps me reach a deeper state of rest. 1/9 #MECFS #pwME #Photography #SelfDocumentary

Same as you the last 4-5 months. When most severe, same as well. 24h absolute stimulus free. No phone, no talk, no movement, no people, no noise. Just an endless feeling of dying and physical collapse. Heart, stomach, hormones, immune, psy, sleep... Every day. For months. Escapes comprehension.