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Lupus Fatigue: Causes, Treatments and Management
YouTube video by Kaleidoscope Fighting Lupus
Posts that mention lupus and accounts devoted to the disease. Limited to English posts.
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- 📅 Updated about 1 year ago
- ⚙️ Provider skyfeed.me
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@kaleidoscope-lupus.bsky.social
20 minutes agooday, we are excited to post an encore release of one of KFL's most popular videos, “Lupus Fatigue: Causes, Treatment and Managing Expectations" with Dr. Sharon Dowell!
Here's the link: youtu.be/Fm9QFcWsnUg
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@kaleidoscope-lupus.bsky.social
22 minutes agoKFL's latest article, "Lupus and the Social Construction of Health" explores how social expectations can affect those living with lupus, and what can be done to make things better ... for everyone!
Read the article with this link: ow.ly/f77250VKEBF
ow.ly
Lupus and the Social Construction of Health - Kaleidoscope Fighting Lupus
Introduction: How Society “Constructs” Illness The Social Construction of Lupus So, What Can We Do? In Conclusion - It Takes a Community! Introduction: How Society “Constructs” Illness It is easy to t...
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He actually saved 4.8 TRILLION lives. Plus, he stopped 19 active volcanos from erupting, caused 16 hurricanes to break up, cured leprosy, lupus, and muscular dystrophy, and saved the prairie dog from extinction. All hail our savior.
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Lupus is acting up today and it’s only 11:39 & need a nap!
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🚨 Según una encuesta llevada a cabo en 2022 por la Federación Mundial de Lupus:
🟣 El 87% de los encuestados respondió que el #lupus ha afectado a uno o más órganos principales o sistemas.
⚡ Los más afectados fueron la piel y el sistema musculoesquelético.
#30DíasLupus
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And when you go the doctor and he says that you’d be healthy if it weren’t for that cancer, mesothelioma, and lupus, this is the same analysis.
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🧠 Brainfog is one of the most invisible symptoms of lupus, and it still has no official scale.
Prof. L. Arnaud & LBFSS team, with the support of Lupus Europe, are changing that—and they need YOU.
📲 Fill the survey. Let’s make brainfog visible.
🔗 lupusresearch.limequery.org/697679?lang=en
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GOTEL 2025 is just a couple of days away! Opening up a @tiltify.com auction house featuring some amazing art from Erik Krenz and Tara Hân-Trần Johnson. All proceeds go to @lupus.org.
Auction Link
tilt.fyi/YQshJo11qx
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Please join us to spread awareness of this debilitating disease! Any and all donos go directly to the Lupus Foundation to help with research and resources for people suffering with Lupus.
#Vtuber #Lupus #VtuberUprisings #smallstreamer #Vtubers #ENVtuber
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In about 24 hours I’ll be kicking off my participation on GOTEL the largest collaborative charity event for @lupus.org . Really exited but also really nervous because it’s my first foray into charity streaming
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May starts game on to end lupus! I will be fundraising all month! I have fun incentives and milestones planned! Please join us in raising money for research.
tiltify.com/@cryshard/cr...
tiltify.com
Tiltify - Made for Fundraisers
We give you the tools to engage with your donors and raise more for your charity
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Going to finalize times and get a graphic out for the Game On! To End Lupus! Charity this weekend and all through the month!
tiltify.com/@rocker-fox/...
tiltify.com
Tiltify - Made for Fundraisers
We give you the tools to engage with your donors and raise more for your charity
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😩 my grandma said I just need to eat saging to cure my lupus, kulang lang daw nang potassium and she keeps saying my chronic migraine is "nasa isip" ko lang. I--
I am so defeated 😂
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acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
📖”Aberrant IgG glycosylation develops in children with LN and adversely alters podocyte metabolism, rendering these cells vulnerable to injury. Successful treatment reverses IgG glycosylation”
#lupus #lupusnephritis 🦋🫘
acrjournals.onlinelibrary.wiley.com
Aberrant glycosylation of IgG in children with active lupus nephritis alters podocyte metabolism and causes podocyte injury
Background Podocytes are integral to the maintenance of the glomerular filtration barrier. Their injury results in proteinuria and disease progression in lupus nephritis (LN). Aberrant IgG glycosyla...
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✅ Social media campaigns like Let’s Talk About Lupus (Latin America/PANLAR) and the ArLAR Arthritis Awareness campaigns (Middle East/North Africa) show how LMIC-led projects can educate widely.
❌ Sustainability is tough without institutional support and funding. Volunteer work is not enough.
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She also breaks out in hives from the sun, but we all do, and then get diagnosed with Lupus in our 60s when all our organs are failing. Tag RFK actually, because Autism is connected to autoimmune disease, and that should be studied more, maybe.
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💜 We want to thank our sponsors for supporting our CAR webinar. Together, we’re driving research, education, and hope for the lupus community. A big thank you to Bristol Myers Squibb, Cabaletta Bio, Century Therapeutics, Cullinan Therapeutics, Fate Therapeutics, Nkarta, and Novartis.
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Im heading towards a complete collapse because I am never allowed to sleep and am under constant stress. Having lupus is incredibly difficult at the best of times and these are beyond not
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Lace Up for Lupus! 💜👟
Join us Sat, May 17 for the 2nd Annual Lupus Walk supporting MMRI’s lupus research!
🏃♀️ 1-mile walk or untimed 5K
📍 2150 Bleecker St, Utica
🕘 Reg: 9AM | Walk: 10AM
Walk solo or with a team—your steps matter!
👉 runsignup.com/lupuswalk
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Reminds me of the time my extreme lupus ++ coworker was invited to be the representative patient member on the experience committee ( or some such ) as a frequent flier.
They uninvited her before her year was up. Got much more feedback than they wanted to deal with.
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s4 of house now. there's finally a lupus case🎉🙏🎉🙏🎉🙏🎉🙏🎉🙏🎉
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Finally saw my doctor today, a follow up from my neurology appointment; 2 years of trying to find out what's wrong, crossing out all other possibilities and I finally have an answer.
I have been diagnosed with Functional Neurological Disorder (FND) and there is no cure.
At least it's not Lupus.
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A few months ago, my girlfriend discovered that she also has Lupus. It’s been a challenging journey for her, and I’ve been trying to support her through it.
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